Outside Resources
HANC and UCSF Analytical Hair Laboratory Video Series
HANC invited community representatives from the four NIH-funded HIV/AIDS clinical trials networks to submit their questions about research study specimens. In response, HANC produced a video filmed at the UCSF-Hair Analytical Laboratory.
Who has access to participants’ hair samples once they enter the lab?
Do you think the community should be involved in the research process?
Can DNA from hair be used to identify participants?
How long are hair samples kept?
Lifetime Survivors Network
Information coming soon!
The Dandelion Movement
The Dandelions Movement envisions an equal and equitable future for all people who have been living with HIV for a Lifetime. Revolutionizing how HIV impacts our community through a lift as we climb approach to ensure community inclusion is ongoing-ly sewn into the work.
"In 2023, the largest organized gathering of lifetime survivors to date took place in Washington, DC. During those meetings, this diverse group of individuals led by women of color agreed on the importance of organizing into a wider network called the Dandelions Movement. The name "Dandelions" comes from the iconic spoken-word piece of the same name by poet and activist Mary Bowman, also a lifetime survivor, who passed away in 2019 at age 30. The group outlined the terms by which their community must be called: lifetime survivors, or Dandelions. They also came up with a list of crucial demands – such as respect, inclusion, and to be reflected in decision-making tables – to address the lack of research, programming, and representation regarding this community." - The Well Project
Mary Bowman - Dandelion
"Mary was 30 years old. Born with HIV, she lived out her experiences of growing up and living with HIV (and losing a mother to AIDS) through her art. As a young, out woman of color, she was a dynamic, vital voice for the next generation of individuals living with HIV — proud, willing to speak of her own challenges with not just her own health needs (mental health, social support) — but also a fierce advocate for other young people with HIV for whom a voice was lacking." - The Aids Memorial
MORE COMING SOON !
